Resource description:

Have you supported staff or patients with Long Covid, or experienced it yourself? How can employers and managers best support you at work?

KeepingWell NCL are developing a support webinar and resources for health and social care staff managing different experiences of Long Covid – so we need our staff to help make sure we provide the support they need. Have you:

  • Worked in a Long Covid service or with Long Covid patients?
  • Managed or supported with staff with Long Covid in your team(s)?
  • Experienced or recovered from Long Covid yourself?

Help others like you get the support they need by participating in our Experience-Based support project.

“There’s so much we don’t know about Long Covid – people who have experienced it really are the experts. That’s why it’s vital that staff and managers themselves shape their Long Covid support, so that we support you as you want to be supported.’

Emily Kenworthy, Hub Practitioner and Occupational Therapist

Get involved

To participate in the project, please sign up to join one of the following discussion groups:

  • 27th October, 12:00-13:30, via Zoom – Staff in Long Covid services or working with Long Covid patients
  • 31st October, 12:00-13:30, via Zoom – Managers supporting staff with Long Covid
  • 4th November, 12:00-13:30, via Zoom – Health and social care staff who have, or have recovered from, Long Covid

Please note that you will only be able to join one of these groups, so please sign up for the group that you feel best fits your experience.

All attendees will be asked join us for a screening and discussion of the short touchpoint film created from your discussions on 24th November, 12:00-13:30. Please ensure you are available to join us for this session when you sign up to participate.

Please also ensure that you have read the ‘Information for participants’ booklet above before signing up.

If you have any questions, please ask our team via our health chat or email us at

We can’t wait to hear from you. Please sign up below:

Staff in Long Covid services or working with Long Covid patients – 27th October 2022

Managers supporting staff with Long Covid – 31st October 2022

Staff who have (or have recovered from) Long Covid – 4th November 2022

What is an Experience Based Co-Design support project?

Experience Based Co-Design is a type of research and design project that helps service users and practitioners design their support together, with both groups’ experience and expertise seen as equally important. This makes it an ideal method for creating support for conditions with varied experiences such as Long Covid.

Participating in an Experience Based support project includes attending a discussion group to share your experience with project practitioners and participants. During the discussion, we will ask to record some of your responses to create a touchpoint film. All participants then attend a screening of the touchpoint film and agree next steps for designing Long Covid staff support with the project practitioners.

This film will be used only within the project, and the project leaders will always ask you before recording a response or sharing any part of the recording beyond the discussion groups.

This is an adapted version of the Point of Care Foundation’s Experience Based Co-Design methodology. You can find out more about what the project entails in our ‘Information for participants’ digital booklet below:

Read time: minutes
Link to resource:
Topic: COVID 19, In the Workplace, Physical Health, and Staff Wellbeing
Audience: Health professionals and Social care professionals
Who is this for: Individual
Resource format: Activity and Workshop